I’ve missed roughly a days worth of Epilim and honestly, want to be done with it and continue not taking it. That said, I also like driving and I can’t without taking it, so am back on the drugs, but I hate having to take it every day, it’s so much work.

All Clear

Had my followup visit with the neurologist today, and essentially all is clear. so I just need to continue on the dosage and my next appointment is at the previously agreed to time of November.

What I will say though, increasing my dosage hasn’t been easy… I’ve felt nauseous and had very reduced alcohol tolerance (second one not so bad) for a bit now, and am hopeful it will pass soon. I’ve also seemingly increased my appetite, which doesn’t work with the nausea, and has resulted in a slight weight gain (few kilos).

Another EEG

Today I had another EEG and must say it’s really taken it out of me. I felt sick this evening and have pains in my chest every so often like a bruised rib or something.

Incase I haven’t mentioned it, the test essentially starts with me facing a slowly blinking light source with my eyes alternately closed and opened. The intensity of the blinking increases until it seems like its on constantly. Following that I do deep breathing with my eyes closed for 3 minutes, that usually leaves my fingers tingling, and certainly did today. I then get a bit of time to recover and the test is over.

Results on Friday.

EEG Results

I just realised I never posted my EEG results.

Essentially, there were some blips on the EEG, but they were all under a second, some that were on just one side of the brain, some on both. Ultimately, there should have been none as I am medicated.

Effective immediately my Epilim dosage has been increased from 800mg/day to 1400mg/day, and I’m going to have to do another EEG (luckily not sleep-deprived) in a couple weeks, along with a blood test. My neurologist wasn’t pleased that something may have been missed, so he’s quite keen to cover all bases now.

The issue is that the EEG tests I’ve done are only for a maximum of 30 minutes, so I hardly have time to actually get to sleep, while when I’ve supposedly had convulsions that Dee-Anne has noticed, I may have been asleep for hours. So it’s hard to replicate. There must be somewhere I can do an overnight sleep study.


In the last 30 hours I’ve only had 1.5 hours sleep and I’m certainly feeling it again. Had my EEG this morning and in left feeling like I hope I performed, otherwise I have a feeling it’ll turn into more sleepless nights and expensive tests. I really don’t need to be staying up for 24-hour periods at a time when I have plenty of Uni going on that requires reduced stress and good rests.

I get my results on Thursday.